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Introduction

Since its formal recognition in the U.S. in the early 1970s, Lyme disease has become known to alert citizens across the country. It came to the attention of the medical world after two concerned mothers in the area of Old Lyme, Conn., contacted public health authorities about an unexplained rise in juvenile arthritis in their neighborhoods. Subsequent research established that the arthritis was one symptom of what is now called Lyme disease. It is caused by a species of bacteria, Borreliosis burgdorferi. These are spread by particular kinds of ticks.

During the 30 years Lyme has been under scientific scrutiny, two conflicting viewpoints have developed as to its frequency, distribution, diagnosis and treatment. One is the mainstream view presented by the Centers for Disease Control and Prevention, the National Institutes of Health and Yale University.The other is presented by a large and growing group of Lyme doctors and patients and their organizations. The first minimizes the seriousness of the disease and problems in treatment that have been well-documented in the last decade, in studies mainstream journals will not publish. The second, accepting these studies and 30 years of on the ground observation by family doctors, sees it as a potentially crippling, even fatal, disease in need of much wider research, a more inclusive standard for diagnosis and much more aggressive treatment.

The personal experience of the author of the materials presented here indicates that doctors in northern California are following, most without question, the mainstream view. (see “personal statement of Jentri Anders, PhD). This is in spite of the fact that northern California is accepted by even the CDC as an area endemic for Lyme disease. Northern California doctors are largely ignorant of the details of the controversy and the fact that it is rooted in the politics of research funding, the corporate irresponsibility of pharmaceutical companies and the vested interests of insurance companies.

The materials presented here are aimed at helping individuals weave their way through the conflict in order to realistically assess their own chances of having the disease. Although the two positions have been equally researched, the purpose of this webpage is to provide assistance to potential Lyme patients by presenting the view of the second group. The mainstream view can be easily found on the standard medical websites, through the CDC or any public health agency.


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